Canine Autoimmune Hemolytic Anemia (AIHA & IMHA) - Lucky just diagnosed today

My 11 yr old lab/Dalmatian was diagnosed today. I feel horrible because I was pretty sure he had vestibular disease by the way he was acting with the balance issues. I didn't notice the pale gums. I've been researching as far as I can. His blood work shows his HCT at 9.2%. He was put on the usual cocktail of drugs and the vet is sending me the ER vet tonight for a transfusion. I am scared to do this. It seems like the only thing to do I am reading due to the severity of his condition. He gave me a 35% chance of survival. It also kind of upsets me to read that vaccinations can cause this. I often kicked myself for not taking Lucky in for regular shots and exams. I finally go his shots done awhile back and he is now sick. I am not saying the vaccine caused it but it seems like it to me. I am very frightened I will run out of money in the long run. I am praying the first transfusion can bring him back and we can get it under control. Or at least give him a few more months of pain free living.

Jerry WV

Oh, all the best to you and Lucky. My Juliet just had a second transfusion today. We are seeing a specialist on Friday. They gave us a 50/50, but Juliet is just 7.5 years. They said she looks "like a million bucks compared to others at this stage" and that is why they have hope the drugs are kicking in. Like you, the financial burden is large...we're on the plastic for this one. At Lucky's pcv level below 10, transfusion is really the only thing you can do for now. All of us here are with you and sending out love and good thoughts.

Pat Vermont USA

Dear Jerry, I am so sorry your dog (what is his name?) has been diagnosed with this awful disease. First of all, take a deep breath and do NOT, I repeat DO NOT blame yourself for anything! You obviously did the best you could with the knowledge you had at the time. You love your dog unconditionally and will do the best with the knew knowledge which you will gain in the days and weeks to come. Second, do not listen to anybody that gives you survival percentages! Your dogs survival depends on so many things, things nobody can see in advance. Stay positive and read the success stories on the Meisha's Hope website: http://www.cloudnet.com/~jdickson/successstories.htm Learn as much as you can from the website and from this board and your dog has a very good chance to survive! Don't get me wrong, this is a very serious disease. But many dogs have beaten it. The process is a roller coaster ride, that nobody that has not been there can understand. It is emotionally and financially draining. This board can help you with the emotional problem and also with the experience many here have. There are people here that know more about AIHA than your average vet! The financial aspect you have to work out yourself, but I know many here might have tips for that too. Vets can put you on a payment plan, you can shop around for cheaper medication and so on. Please keep asking questions and keep us posted how your pup is doing! We will be thinking of you, best wishes, Brigitte & the poodle boys

Brigitte BC Canada

Jerry, Like Brigitte said don't beat yourself for not recognizing a disease that most of us had never even heard of until our dogs were diagnosed. It is claimed to be "rare" You can tell by this discussion board it really doesn't seem to be that rare anymore. I hope you have read up at Joanne's site it will help you prepare yourself with knowing what you need to be talking to your Vet about. It is terrible to see your dog in such terrible shape but the disease itself does not cause them pain it is the low levels of oxygen that make them appear so bad. Sometimes you never find out what the trigger was. Could be genetic, vaccinations, bee stings etc. Focus on saving your energy for your boy. Please keep us posted and know we are all pulling for Lucky! Penny

Penny Lytle Creek Calif

Jerry~ So glad you got Lucky to the vet when you did! Yes, this comes on very suddenly and most of us were caught totally off guard. It seems there are many triggers and most of us do not know the cause. Some of us do...and we still have to go through the fight with our beloved pets. Know that we are praying for you and Lucky. I pray his treatment has no side effects and that he reponds quickly. Blessings, Cindi & Tori (IMHA)

Cindi PBC

Jerry- My heart goes out to you today. My dog Lucy was diagnosed 3 months ago, so I understand how you feel. Lucy has had to undergo a second transfusion, but we are still hanging in there. Luckily you found this chat thread, which is a huge support. Everybody here has been where you have been, and can answer your questions. Stay strong for Lucky, and know that we are all sending our prayers. Leigh & Lucy

Leigh New Jersey

Jerry, how's Lucky doing? If you can fill us in on all the info you have it'd be great! Drugs, doses, weight, test results, ....everything! Hope to hear from you soon. Thoughts and prayers for Lucky, Johnny & Tessy

Johnny

Hi,Thanks for all the prayers,thoughts and kind words. I really believe him having so many people pulling for him helps tremendously. My phone has been buzzing all day with texts from coworkers,friends and family asking about Lucky. He's just one of those dogs that even people who don't like dogs love. I have 11 years of good memories with him and he deserves a few more I think if he is willing to stay around. Lucky is doing a lot better today. Last night was very scary. He was almost non responsive at times. I took him to the animal ER for his transfusion. They didn't have a whole lot of blood but did it anyhow. He went from 9.2% to 16 then it dropped to 13 by 6 am. I took him directly to the vet. It was back up to 16 as of 9 am. That is a good sign. They were really happy with the results and his vital signs are all good. The real gift was when they bought him out this morning. He saw me and started wagging his tail and was so excited to see me. He has been his old self some today. Barking at the door and eating a lot. He is still very weak and I am not letting him stay on his feet too much as the vet instructed. The current list are meds are Carafate 1 grams every 12 hours, (two hours before tagamet) Tagamet 300 mg every 8 hours, Prednisone 20 mg every 12 hours, Doxcycline 100 mg every 12 hours. Pill pockets are a life saver. Anyone see anything out of ordinary about these doses? Thanks again and I am really glad I found this forum. It's sad we are all dealing with such a dreaded disease. Thankfully our pets have loving owners like us.

Jerry

Jerry, I really think that Lucky should be on higher doses of pred given that he's part lab he's probably a bigger dog....what does he weigh? I'd be voicing my concerns about this with the vet and would ask about adding cyclosporine to the mix. It's pricey but works best outta all the other drugs! you'd use this alongside the prednisone! Again though, how much does he weigh? Johnny & Tessy

Johnny

Jerry, I am glad you see some signs of improvement in Lucky. (Sorry i completely missed his name in the heading) I agree with Johnny, the Prednisone dose seems a bit low. According to what I have read it should be 1-1 2/2 mg per pound of dog per day. So 40mg per day would be for a 40 pound dog. These high doses are brutal on the dog, but they save their lives. I have not heard of tagamet being used but assume it is a immune suppressant? maybe some one else has experience? A lot of times a secondary immune suppressing drug is added. It is usually azathioprene or cyclosporin. Both of these drugs take a while to take effect, but when they do, the prednisone dose can SLOWLY be lowered. Your vet is correct to ask you to keep Lucky quiet. I am sure he is tired from the whole ordeal anyway. (Lucky, not the vet:) Be sure to give Lucky a quality food. Many of us have started to cook our own, chicken, fish, greens, potatoes and no wheat, corn or soy. maybe you could also start to look into supplements. Petinic is a product containing Vitamin B, folic acid and iron. This would be important for blood building. Of course we are pulling for Lucky! I hope he will make his name proud. Best wishes, Brigitte & the poodle boys

Brigitte BC Canada

He weights around 54 lbs. I'll call them and ask them why it's so low. Could it be because of his age? Suppressing a older dogs immune system could be a big problem. He is on the petinic suppliment. I forgot to mention that. The vet suggested that yesterday. He has some fluid retention under his neck that's scaring me. The vet wants me to watch it today and maybe bring him back in tomorrow.

Jerry

Hi Jerry, Our prayers are with you. My dog is doing well so keep your hopes up and take the advice of the experts on this site especially Johnny, Bridgette and Patrice as they know there stuff.

Sue and Archie Cambs UK

The only reason I can think that they'd keep the levels this low was if there's a current liver problem and they don't want to aggravate it more...other that that I'd be thinking somewhere around 70-80mg daily would be appropriate depending on where the lymph counts currently are. Fluid retention under the jaw??? That's a first for me! How does it feel...hard/soft? Is it under the chin/jaw or at the back on the neck area? Good to hear the pet tinic is started! I'd highly recommend having the thyroid checked! If you can afford it have a sample sent off to Dr. Dodds. I can help you figure out how to do it if you decide to do so! Best money I ever spent!!! Keep us posted, Johnny & Tessy

Johnny

Hi Jerry, So sorry to hear about Lucky. My senior dog Millie was also 11 years when diagnosed, and we are nearly 2 years down the track, and she's a thriving, energetic 13 year old. she was on the very high doses of Prednisone, it is vital to get the dosage high enough to suppress the immune system and stop the red cell destruction. Do speak with your vet about this dosage. I also think it's important to find out whether or not Lucky is regenerating red blood cells or not. Check the reticulocyte count on his blood results and let us know. I am so glad you have lots of support around you during this stressful time. It definitely helps. Sending healing thoughts Lucky's way, Sam and Millie.

Samantha Geelong Australia

oops, I meant to mention that fluid retention is common with IMHA, but around the jaw does sound odd. Samantha

Samantha Geelong Australia

Hi, The fluid retention was actually around his lower neck and chest. It's nearly diminished though so I am relieved. The few times he has had a infection of any kind or any reaction to something in his life, his lower neck and chest swelled up. It's always been weird. It's not hard at all. When it was there,you could see visual signs of fluid moving around under his coat. He does have some fluid/bulging around his lower abdomen area now. Then again he has been eating like a horse. I am very concerned of liver damage and have been watching when he goes to the bathroom for any warning signs. None so far. He looks really good though. I don't get it. His coat is shining and he looks very healthy. Pre transplant he was underweight and looked horrible. Now he looks more healthy than he has in years. His coat and general appearance look really good. This transpired all in 48 hours. The change is unbelievable. I keep checking his gums and they are more pink every time I check. Still not where they should be I think. Yesterday was the biggest change. Before I left for work he was barely walking around and was resting. He seemed ok, just tired. Jen texted me a picture of him walking around and said she couldn't get him to rest while I was at work. He barked anytime he heard a car that sounded like mine. I didn't believe her and got home as soon as I could. He greeted me at the door. It was just great. I know it could be temporary so I am enjoying every minute and can't stop Thanking God for giving us more time. I was crying my eyes out in happiness just seeing him moving around again. I am going to the vet either tomorrow or Monday morning. We're getting blasted with snow currently and I hope I can get out in the next few hours. I am definitely going to discuss the dosages with him. (or them, there are two vets in the same office both monitoring Lucky) I believe we are on the right track and he seems to be responding to treatment. I can't wait to see some test results. I sure hope he is regenerating new blood cells and everything checks out. And I forgot to mention, I firmly believe the pet tinic is helping. It seems to be giving him some pep. Thanks again for all the support. I am really glad I found this Forum. Jerry

Jerry

I forgot to mention I am hearing impaired. I received a cochlear implant in 2008 and hear pretty good now. Lucky has always sensed I can't hear and has been my ears all this time. He barks at the door and always has let me know when someone was nearby. And when he needs me to wake up so he can go to the bathroom, he beats his tail on the bed to wake me up or puts his paw on my chest and pushes me. He was never trained for this. He just picked it up. He's amazing. I am up this early because I was awakened to him doing the tail thumping. Not something I expected to happen again anytime soon. So I am just overjoyed.

Jerry

Dear Jerry, Lucky sounds like an amazing best friend and a fighter too? He knows how much you rely and love him and he is doing everything he can to fight this terrible disease. Everyone here always reminds me that this disease is not a sprint but a marathon AND...it truly is. Enjoy and relish all the high moments. Give lots of hugs and kisses to Lucky. Post often when you want to express anything even if you posted a few minutes before. My dog, Gracie's PCV dropped to 9% also before her transfusion and now it is almost three months later and she is beginning to stabilize at 36%. Keep reading all the success stories on Meisha's Hope. It gets me through the times when Gracie has a slip backwards. Best wishes to You, Lucky,and your friends and family, You are doing an awesome job! healing hugs, Gwen and Gracie

Gwen Rhinebeck

Lucky seems to be ok today. I am still slightly concerned. He is not gasping for breath. He is taking deep breaths though. I checked his temp. 100.5. That's supposed to be normal right? His gums still have color. They aren't a dark pink though. He could use some more color. He's eating a lot and using the bathroom. He does appear to get winded from just the walk outside. I am hoping this is normal since it's only been a few days. I hope he'll hold steady until Monday. I can't help but worry. I am leaving for work for a few hours so I am trying to make sure he's ok before I go.

Jerry

Jerry, the low PCV makes the oxygen transport difficult and that is why Lucky is tired and winded. This is not a very scientific explanation, but this is how I understand it. It is normal. Once the PCV is going up this will improve.The being tired is probably a way for Lucky's body to tell him to take it easy. He needs a lot of rest to heal. Best wishes, Brigitte & the poodle boys

Brigitte BC Canada

Brigitte, You could not have said it better. Patrice

Patrice NYS

hi Jerry, fluid retention is common - ascites its called. Millie suffered terribly from it in the early days. I was regularly taking her in for frusamide injections, and managing it in between with flusaplex drops. This also might contribute to the laboured breathing and lethargy, I imagine it would be quite uncomfortable! As Lucky's PCV rises, the fluid retention will begin to resolve. Lucky sounds like a wonderful companion with a wonderful caregiver! Sam and Millie.

Samantha Geelong Australia

I hope Lucky is doing better. Is he on aspirin to prevent clots? He is so winded from walking because he is so anemic. I set up an X-pen right next to my house so Chloe only has to walk a few feet to pee and then back in to the house. Chloe also had a lot of fluid retention and the ascites was really obvious to all. Her belly was huge!Try to keep him quiet and resting as much as possible.The prednisone also makes the dogs pant and makes them hot too. Chloe kept to the tile to stay cool and appeared to be in a deep sleep most of the time.The folks on the board will tell you about the liver protectorants too. Hoping for the best for your boy Lucky. Cheri and Chloe

Cheri Maryland

Thanks! I feel better knowing some of this is normal. I've noticed the panting and wondered about that. The fluid retention is going down. A lot better than it was. I've been following him outside and staying with him. I have two steps going into the house and I usually lift him over those unless he beats me to it. He refuses to slow down that much. He sleeps for several hours then walks around some wagging his tail at everyone. If there is food being eaten he is right there beside us begging for food. He is eating as much as my Great Dane is. They didn't put him on any aspirin. I was scared to give it to him considering all he's taking. Should I ask the vet? I have a bottle of milk thistle that I bought for myself recently. Can I give him that? Thanks again for all the support.

Jerry

Jerry, I used to tease TEssy calling her the big bad wolf!!! She used ot huff and puff so much I thought the house would blow down! :) She really used to breathe heavy...especially when sleeping!! You could try C0-Q-10 if you'd like. Give around 10mg to start. This should help with the breathing some! Milk thistle....YUP!!! You should have had this started days ago!!! It's soooo important to be preotecting the liver from the get go! What kind of milk thistle is it? Start with around a quarter the recommended human dosage and slowly up it to the full human dosage. Tessy also always went for the cool areas to lay! Keep us posted. Johnny & Tessy

Johnny

Hi, It's just called Naturally Preferred brand 350mg a pill. I went ahead and started him on that. His breathing is actually improving today so that's a plus. The only problem I am having today is getting him to lay down and rest. He refuses to take it easy. :)

Jerry

Jerry, you can ask the vet about aspirin. It is not indicated for every dog, only if there is clotting, coagulation happening. This can be tested. It is probably worth doing that, just to be on the safe side. Best wishes for you and your Lucky dog, Brigitte 7 the poodle boys

Brigitte BC Canada

HCT at 20 and holding. We're going to keep at it.

Jerry

Jerry, of course you are keeping at it! Celebrate the small successes and stay positive. You are fighting for Lucky because you treasure him so much, he is lucky to have you in his corner! Best wishes, Brigitte & the poodle boys

Brigitte BC Canada

I asked why his prednisone dose was so low. They said because of his body weight and age. They are supposed to contact me to let me know when they want me to lower the prednisone dose. I am not too happy about that idea. It seems too soon. I would want his HCT to be a little higher before doing that. He is severely underweight. After the transfusion I was happy because he appeared to be putting on weight. That was just fluids. He actually lost a few more pounds since last week even though he has been eating a lot. We are hoping to get him to put some muscle tissue back on. It's scary seeing him like this.

Jerry

Jerry, It will be hard to put muscle on Lucky at this point. The muscle loss is a side effect of the prednisone. Just keep feeding him a very nutritious diet with minimal or no fat and no grains. Home cooked chicken with potatoes and greens would be best. I remember looking at my dog thinking he definitely does not look pretty, but then.....beauty is in the eye of the beholder!!! Is Lucky on any supplements like petinic (vitamin B, folic acid and iron) And here I go again.... has his thyroid been checked? He would probably benefit form a thyroid supplement. I am so paranoid about hypothyroidism in dogs AND people that my girls seriously want to get me a T-shirt with "Have you checked a thyroid today?" made:) Please keep giving him Milk Thistle. I was once told by a pharmacist that you can not overdose on Milk thistle, but please double check with your vet. He should also be on Sam-E to protect his liver. I am sure you feel like all you put in this dog is medications..... I understand your concern about a prednisone reduction at this point. At a PCV of 20 I think this is definitely too early. But I am not a vet and my knowledge about the disease comes mainly from this board. You have never explained why Lucky is on Tagamet, I would really like to know more about it. The usual drug of choice as a second drug is azathioprene or cyclosporin. Best wishes to you and your Lucky boy, Brigitte & the poodle boys

Brigitte BC Canada

He has not had his thyroid checked. I'll be sure to ask. The vet told me not to use milk thistle at this point since he shows no sign of liver disease. I have him on it anyhow. I asked the vet why he is on Tagamet and have not recieved a response yet. We've been staying in touch between office visits via email. Lucky is still eating a lot and drinking a lot. I check his temp once a day and inspect his gums. They are pretty pink currently thankfully. He can't wait more than two hours to urinate. I bought some puppy pads to put near the back door. He does try to go on them but he overfills them. I feel bad for him. I have him on a leash hooked on my arm at night so he wakes me when he has to go out. He sleeps on his bed right beside me. I don't always feel him trying to wake me so that was the easiest solution. He has not reduced his dose of Prednisone yet and I hope he can stay on it until we get that count up. Overall I am pretty happy with how he has been doing. It's hard to get him to rest though. He tried humping my Great Dane mix named Megan last night. She's twice his size so I don't really see how he's planning on doing that. lol He just seems really happy to be feeling a little better and it's really great to see him feeling better.

Jerry

Tagamet is an acid reducer...a stomach protector more like pepcid or prilocek. I'd keep him on this! ALSO, great idea to continue with the milk thistle! Too often vets will say it's not needed cause there's no damage present! That's the whole point doodoo heads....to help *prevent* adn *protect* from damage! I think most docs are just iffy about adding anything since most of these dogs are already on so much but milk thistle is well worth adding! When's the next vet visit? Do you have copies of bloodwork? LOL @ the humping! At least he's feeling better! Continued thoughts and prayers, Johnny & Tessy

Johnny

Johnny, Thanks for clearing up the Tagamet! for some reason i thought it is an immune suppressant. And we keep learning...... Best wishes, Brigitte

Brigitte BC Canada

Jerry, I think the humping is a great sign that Lucky wants to get better! He is still in charge, still the boss. Best wishes, Brigitte

Brigitte BC Canada

Bad news today. I woke up to find Lucky a little more sluggish. His gums were lighter. I took him in and he's at 14%. They ordered some blood for Monday and put him on cyclosporin. (should have had him on this from the start) If he seems to get worse they want me to take him to the vet ER and they'll send the blood there if it comes in tomorrow. The good news is he is still all there. When the vet was sitting on the floor Lucky once again showed whose boss by knocking the vet over and humping him. The vet was laughing so hard he was near tears. He said that was good sign. I am stressed out bad. My finances are stretched to the max. I have a care card and its almost maxed out. I am going to try to figure out what to do to pay for any further treatments. I think I can manage one more blood transfusion but I don't know if I could handle anymore. It's a sickening feeling when you can't take care of your best friend when he needs it.

Jerry

I am so sorry to hear about Lucky... our dog was diagnosed as AIHM last week... and his PCV is low as yours.. 13%. Other than that, like Lucky, he is pretty "okay". He gets excited to see me or my husband, and he gets ready while I am cooking supper for him... I totally understand how stress you are and how helpless you feel... there is nothing you can do... if there is no fund available for Lucky to get help.... Our budget is very tight and we don't know whatelse we can do for our dog... I will pray for Lucky...he is in my thought & prayers..

Meg

I feel your stress Jerry! I was a bag of nerves for the whole first month and then some when Tessy was first sick! I hope Lucky turns the corner and gets better without needing another transfusion. I'll be keeping him in my thoughts and prayers. Johnny & Tessy

Johnny

The vet is calling the ER right now. He seems to have gotten worse since I got home. Looks like we'll be going in tonight for another transfusion.

Jerry

I forgot to add Thanks again for the support and prayers. Jerry

Jerry

Keep us posted if you can. I'll be checking in often on tonight so hopefully we'll hear some good news. While you're there ask for copies of all the bloodwork. I'm hoping things turn around for you both! Johnny & Tessy

Johnny

hi Jerry, Thinking of your boy. Adding the Cyclo is a great idea. Maybe the immune system isn't fully suppressed yet due to the Prednisone dose. Does Lucky have regenerative anemia? Sounds like he's definitely a fighter and is keeping everyone in check! Our thoughts are with you, Sam and Millie.

Samantha Geelong Australia

Jerry, I am so sorry this is so difficult right now.We have insurance, but we have to pay up front. When Summer first became ill the first Vet did not even act as though it was serious. It was just days before Christmas and I was pretty tapped.I was crying and told the office I had insurance, this vet was even a neighbor, that is why we started going to him,and I was told too bad. Just is so hard. Fortunately, the next vet told us about Care Credit...it got us through that hump. I am hoping maybe these links might help you find some finacila relief. Let us know.... I am praying for you and Lucky. Carrie and Summer http://www.petandwildlife.com/dog-info/where-to-get-help-paying-vet-bills.html http://www.aspca.org/about-us/faq/financial-help-vet-bills.aspx

Carrie DFW

I am awake (didn't sleep) and on my way to get Lucky at the ER. By some miracle I was able to get a 2nd line of care credit yesterday. His count went down to 9 by the time I got him to the ER. The vet convinced them to agree about billing my vet for everything and my vet would bill my care card for me since I do not have a card yet on the 2nd line. I am on my way to get him. They said he ate twice last night and his count went from 9 to 26. The vet is pretty amazed at the jump. This time they used packed blood instead of a small unit from a donor on site like last time. This ER vet said his Prednisdone dose needs raised (like several of you have told me) and I need to make sure his Carafate is dosed seperately from everything else to help in absorption of the other stuff. If taken with them it won't let them be absorbed properly. I didn't know this. His immune system definitely is still not surpressed. So there is still hope. Lucky has taught me not to give up yet. And I think this ER vet now sees why I didn't give up on him just yet. She was pretty skepticial when I came in due to his PCV being so low. It dropped from 14 to 9 in just a few hours. She gave him a prednisone injection as soon as she started the blood transfusion. I am definitely going to ask the vet some questions this morning and if I don't like the answers I am going to find another one. They have really been helpful but they need to clarify some questions I have. You guys know more than they do.

Jerry

Jerry, just want you to know Summer and I are praying about this. I don't get much sleep these days myself, as she is up about once and hour to urinate! I am glad to hear you made it through the night! God bless you both, Carrie And Summer

Carrie DFW

Jerry, We are praying for you and Lucky.... I am sorry his PCV went down so low but glad it came back up in 20s! Yes, there is always hope.. I still don't give up yet "I refuse" to give up!!! As long as there is hope... Good luck and please let us know how Lucky is doing if you have a chance...

Meg

Hi Jerry, So happy to hear that Lucky was able to get the transfusion and his count went up so nicely. My Jacob passed away in 2008 (he is the Oct. 2003 success story) but his all-time low pcv was 9% and he fought his way back, even without the transfusion so it can be done. He did have two transfusions but for him they made him worse so we had to reply on lots of prayers and his strong will to live. He lived with aiha for over 6 yrs. When he passed at the age of 13, he was still in full remission. Stay strong and know that your sweet Lucky has lots of people cheering on all his successes. Teresa

Teresa va

Jerry, Sorry you are having so many ups and downs but that is how it is with this awful disease. It is unfortunate that so many Vets don't know a lot about treating this. I think most were taught that it is an automatic death sentence. We are all so lucky to have this board and Joanne's Meisha's Hope site to refer to and be able to be our dog's voice when dealing with their care. I hope that this is the turning point for Lucky and he continues to head upward. Keeping thoughts and prayers going your way. Penny

Penny Lytle Creek Calif

Hi Jerry, Good news on Lucky. 26 as a PCV definitely gives time for the Cyclo and Prednisone to work.... Carafate should be given at least one hour before the meds in my opinion, as indeed it does interfere with med absorption. I am glad they have upped the Pred. It is vital to suppress the immune system enough to stop'the destruction of red blood cells. You can monitor this by checking if there is note of the presence of spherocytes on Lucky's blood tests. Spherocytes are damaged red blood cells that indicate destruction is occurring. We are thinking of you and Lucky. Sam and Millie.

Samantha Geelong Australia

Thanks for the kind words. Things aren't not going so well. I had to work today (at work now) since I missed yesterday. I stayed with him until two. Jen got home at five. Jen is calling me saying he's panting excessively and his tongue is out like he's hot. Is this a side effect of the prednisone and cyclosporin ? He's eating and drinking and walking around. But we're really worried about his breathing. It's not right. I am trying to reach the vet and will have to call the ER again. I feel like I can't do nothing to help him. I can't even go to work for a few hours. When I do, I am stressed out worrying about him. I got yelled at by my boss the other day. I have already used almost a week of pto time that I was granted at the first of the year. I know they say they aren't suffering but how do we know? Getting hauled off to the vet several times a week to be poked with needles and being given large doses of nasty medicine doesn't seem pleasant to me on a old dog. That's what is bothering me the most. I can't bear seeing him go through this. :(

Jerry

Oh Jerry, I feel so bad for you and Lucky. Being hot and thirsty is certainly a side effect of the drugs. Since they uped the dosage this is most likely the cause. I know it is so hard to see them this way. Only you and of course your partner can tell when Lucky had enough and what is too much. From what I have been reading from you, you are in tune with your dog and you will know! What I know is that his body will get used to it and it will get better. When you are able to reduce the drugs he will get a lot better. I know the ordeal was hard on my young dog and I can imagine it is even harder on a senior. Remember that dogs live in the moment and if you try and keep it happy and "normal" don't baby talk and show your stress, it will be easier for Lucky. I know this is easier said than done.... I will be thinking of you, best wishes, Brigitte

Brigitte BC Canada

Try to relax (if it's possible). What did they raise the pred dose to? Like Brigitte said it might be due to the increase. Perhaps he got excited when your wife came home. Tessy used to breath extremely heavy the first few weeks after being diagnosed...especially when she got excited. I limited her exercise and the amount of excited she had...this is very important to do. Keep a good eye on him and if he seems to get worse by morning then perhaps make an appointment and take him in to be checked, How do the gums look? Still eating and drinking and having regular potty breaks? Continued thoughts and prayers. Johnny & Tessy

Johnny

Jerry, I am sorry Lucky is not doing well... hope it's side effects from the med doses increase. Hanging there... I know how worry and stress you are now... I feel your pain. I will keep praying for Lucky...

Meg

Hi Jerry, I certainly understand how you feel.... My Millie was also 11 when diagnosed. I wondered if it was fair to put her through all this too.... One thing I did was always look for her will to live. Not once, even in her darkest days, did she ever show me she'd had enough. Her tail wagged even when she couldn't lift herself out of her bed. I now have a happy 13 year old! Like Brigitte said, you know Lucky the best. You will know what's right. The panting is 'normal', Millie did it a lot, particularly when she was retaining fluid. Just give the meds time to work, hang in there. Sam and Millie.

Samantha Geelong Australia

His will to live certainly is still there. Like Millie, not once has he shown any signs of wanting to give up. That's why I am still fighting this battle alongside him. I think it's great that she is still there with you. Jen sent me a picture of his gums and they look pink. Not a dark pink though. . She is cooking him up some chicken for him and he is excited about that. He has had a few accidents in the house ( he went on training pads though) but he is going regularly. He's still eating and drinking well. His Prednisone dose technicially has not been raised yet per my regular vet's instructions. The ER vet suggested it. She seemed very knowledgable about the disease. She didn't give him a very good outlook though. I am very tempted to raise it myself. I go in Monday at 8 so I am going to strongly suggest it. I have been in contact with the vet by text/email the past few days between visits. Today he told me that since they gave him a large Prednisone shot at the ER vet before the transfusion, that may be why I am seeing the panting and everything. Because this is on top of his regular dose and the new drug. I am hoping to convince them to raise it by Monday. I know the side effects may be extreme but I really want him to have a chance. The vet was honest with me today. He said that if he gets to the point of a third transfusion, we might want to see how everything is holding up in his body. They know I am concerned about Lucky suffering. And with each transfusion comes the risk of organ failure they said. I appreciate them being honest about it. Thanks again for the thoughts and prayers.

Jerry

Jerry~ You and Lucky are in my prayers. Praying that the suppressants do what they need to do ASAP! Once the meds kick-in Lucky will gradually be more pink in his gums. Once the vets can began decreasing the Pred the breathing and panting will improve. Please try (and I say, chose to stay as calm as you can), because this is the beginning of your journey. We are all on the road to recovery with our little furkids and we are all at various stages in that journey, but we are all here to give support and encouragement! Keep us posted. Blessings, Cindi & Tori

Cindi PCB

Hi Jerry, Reading your post is like reliving my Jacob's battle, It is so hard to see them pant,pace,etc. The prednisone will certainly do that. My Jacob would be peacefully resting one minute and jump up as if he was chasing something the next. I swear the pred made him hallucinate. But what kept us going is, just as you said, the will to live. Trust me, when Jacob's count was so low I prayed for God to just take him if it was meant to be. I woke up every morning wondering what I was going to wake up to. Every day Jacob got stronger and stronger. Many people on here will confirm this disease is sometimes one step forward and two steps back. The specialist was very up front with me in the beginning. She gave my boy a "grave prognosis" but then went on to say that as long as my boy continued with his will to live and was still eating, alert, and comfortable that we should continue on. I questioned myself more times than I can count as far as wondering if I was doing right by my boy. He never seemed to be in pain. It was more like, "ok something is going on with me.....what is up" and he was just tired, hungry, and peed every hour on the hour. The frequent trips to the vet became second nature and turned my boy into an office favorite, which was very shocking to the staff being that prior to his illness there was a big ol "this dog will bite must be muzzled" sign attached to the front of his file. Before we knew it jacob walked in there like he owned the place and stuck his paw out like " just get on with this.....I've got places to be." I know this is an extremely hard time for you and Lucky but I hope I can provide you with some sort of reassurances. I would also like to add.....it will help with Lucky's panting if you provide him a cool place to rest, like the kitchen or bathroom floor and/or even a floor fan that can blow right on him. My thoughts and prayers continue for Lucky and his awesome dad!

Teresa va

Jerry, the way you describe lucky sounds very normal for the situation. Or course I am no vet, don't know or see your dog.... I am sure by now you have read all the recommendations to contact Dr. Dodds in California. If you have any doubts about the vet caring for Lucky or if they seem to need some guidance, I would suggest you or your vet contact her. Check out her website, hemopet.org. Not only is she an expert in AIHA, she knows everything about transfusions and also sells blood products. I know there have been dogs on this forum that have had way more than 3 transfusions. If it is done properly there should not be a problem between 3 or 5. The only problem will be financial or if it is not the right, matched blood. I totally agree with you, if there is a will to live, you should give him a chance and there is HOPE!!! Try and read the success stories on Joanne's website, they always gave me so much hope. Best wishes, Brigitte & the poodle boys

Brigitte BC Canada

Jerry, I just stop by to see how Lucky is doing today... I hope he is doing better than yesterday... you and Lucky are in my prayers. Meg & Milo

Meg

Probably the worst day of the roller coaster ride so far. I took him in today because he had edema of his urinary trac and could barely pee. After some tests we concluded his protein levels are normal. Its due to his blood cells volume or whatever. Not enough blood pressure. He is at 11%. The vet said he hasn't seen this fast of red blood cell breakdown before. He went from 26% to 11 in just a few days. The transfusions or drugs have not been working at all. I was faced with the difficult decision of either going through with more treatment or stopping. Standing there in the vets office crying while Lucky was looking at me wagging his tail, I decided to do one more tranfusion. He is also wanting to start him on another drug at last resort. It's a chemotherapy drug. Anyone know of this? It's probably in one of these posts so I am going to look for it or google it. He is in really bad shape and it's a miracle that he is up and walking around with his count that low. Even though he's in pain due to the swelling he was wagging his tail at me all morning. He deserves one more try. I'll be in debt for awhile but I'll feel better knowing I did all I could. This is about as far as I can go so after this one, I am praying for another miracle.

Jerry

Jerry, I am so sorry. Obviously the drugs have not kicked in yet ant the distruction is still going on. Could it be that Lucky is being put on cyclosporin? That would be a good thing. It is a drug that was developed to treat people that has organ transplants. It also takes a few days to kick in, but when it does, there have been very good results. I just have to mention Dr. Dodds and hemopet again. This would certainly not be an expensive avenue, since hemopet's prices are very reasonable. You can get a consultation for $45. In my opinion worth every penny. Where is Lucky's swelling? I hope all goes well with the transfusion, thinking of you, Brigitte & the poodle boys

Brigitte BC Canada

JERRY....this vet is an idiot!!! WV...where is this??? Are there any vet schools nearby? The pred dosage should have been uppered long ago AND another immune suppresant introduced! Sure he's up there in age but what does that matter if the disease kills him? The dosages have to be enough to properly suppress the immune system if not you'll be fighting a never ending battle!!! This vet should realize this. TELL THEM to consult Dr. Dodds over the phone...best $45 bucks you'll likely spend! She'll also say the dosages need changing (likely). I'd be wanting to up the pred to at least 65-70mg daily AND would also be wanting (or demanding) to add cyclosporine (Atopica) to the mix. I'll assume the chemo drug is either cyclophosphamide OR azathioprine! Dr. Dodds...perhaps if she talks to this vet she might be able to talk some sense into them! Thyroid supplements....did you add these yet? Please keep us posted...I'll be keeping Lucky in my thoughts and prayers. Johnny & Tessy

Johnny

WV is West Virginia. I upped the prednisone myself last week after the last transfusion. The vet ER recommended it. He has been on 60mg a day. He has also been on Atopica since last Friday 100mg daily. Even with this, his count still dropped. The swelling is in his penis. He could not pee and had to be catheterized. I will talk to the vet and have them consult with Dr. Dodds. And I will contact Dr. Dodds myself as well.

Jerry

Hi Jerry The meds will take a few weeks to work, don't loose hope. How much does Lucky weigh? Ginger was put on 200mg of the cyclosporine (atopica)in the beginning and she weighs 75 lbs, so you might want to run your dosage by Dr Dodds if you contact her. He sounds like he has a strong will to live and it is a very good sign that he is up and walking around. Try to keep him quiet though. Sending prayers Cheryl & Ginger

Cheryl & Ginger Pinevile PA

OMG Jerry , you are in my prayers right now and Lucky of course !!!!! I'm going through something similar and it is gut wrenching !!! Wishing you all the best . This site is amazing . I need to get Gunner on Cylo ASAP from what I'm reading !

jacki Phila

How's Lucky today? How did the transfusion fare? I wouldn't think that 100mg of Atopica daily would do much. For a dog Lucky's size he should be getting closer to 300mg daily. NOW, this dose should be split to give 150mg in the morning and then another 150mg 12 hrs later in the evening cause cyclo only has a half life of i think 19 hrs so it's really important to give it twice daily to keep concentration levels appropriate. If money isn't an issue for you then you can have the vet run trough tests to check the therapeutic range for the cyclosporine. The range is should be between 300-500 ng/ml and the blood should be drawn at teh exact time a dosage is scheduled to be taken (12 hrs after the last dose). These tests have to be sent out to a lab or vet school to be done but give an accurate picture of the levels in the blood. They can be done a couple days after giving an adjusted dose. If Lucky still isn't responding to the meds after the transfusion then you might want to discuss using an injection of dexamethasone. This drug is roughly 5 times stronger than pred and *hits* the system a bit harder. Don't suppose you know the lymphocyte counts??? Please keep us informed on how he's doing. Continued thoughts and prayers. Johnny & Tessy

Johnny

Jerry, I hope that you can get Lucky's meds sorted out fast. Dr. Dodds will respond to you very quickly. I am sending you thoughts and prayers for your boy who is still obviously wanting to fight. Boy we all know about being in debt but these are our kids. Keep us posted. Penny

Penny Lytle Creek Calif

Dear Jerry, I agree with all that has been said.... Doses are too low, which is why Lucky is still destroying red blood cells. You could ask for a shot of dexamethasone - a powerful immune suppressant that can kick start the suppression. I have a senior dog too - but we did not hold back on dosages due to age. Sam and Millie.

Samantha Geelong Australia

He was given dexamethasone injections three times over the past few weeks. I wish I had found this board sooner and had better luck with the vets in treating this. Have not had time to get on here to post. Lucky's edema was so bad in his urinary trac that he was in severe pain. He could not urinate. The only thing the could have possibly done was put a pack on that would need to be emptied out while wearing a cone. He had me up all night whining and I felt so hopeless not being able to help him. He went to a better place this morning at around 10:00 am. Other than losing my Mom, this is the worst day of my life. I made that decision that I would take back if I possibly could. I fought with him the best I knew how with what I learned in a short time. Once he was in actual pain, I could not let him suffer. I miss him already and am at work crying my eyes out.

Jerry

The thing that I will lose sleep over is what if I would have gotten the right care for him at the start? If I had gotten his doses right, I could have maybe prevented the edema and kept his counts high after the first transfusion. I really feel horrible. It all happened so fast. When I was not rushing him to the ERs, I was on the computer looking up info. I learned so much in such a short time and that still wasn't enough to help him. I pray I did the right thing. I just couldn't let him be in pain. He wouldn't eat or anything because it hurt so much.

Jerry

Dear Jerry, Please accept my sincere condolences on the loss of Lucky. Sometimes, no matter how hard we try, it is just not meant to be. Lucky was one lucky dog to have you by hi=s side, he knows he was loved and will always have a special place in your heart. I told you earlier, that Lucky will let you know when he had enough and I am glad he was able to communicate this with you. i know this is the hardest thing we have to do as a dog guardian but it is a responsibility we take on when we take a dog into our care. Lucky will be greeted by many wonderful dogs at the rainbow bridge, where they are all patiently waiting for us to show up one day. Best wishes to you and your family, Brigitte

Brigitte BC Canada

Jerry, I'm so so sorry that Lucky lost the battle. This disease is just plain evil in so many ways. Knowledge is power BUT it's only part of the puzzle! Brigitte and I are both fairly well versed with this disease but at the same time we both lost our furkids to this disease! Don't beat yourself up over what ifs and the sort...it's just pointless! Lucky knew the love you had for him and you went above and beyond what most would for their furkids. With time the tears of his loss will turn to smiles from the memories. ~~~~ When Tommorrow Starts Without Me: When tomorrow starts without me, and I'm not there to see, if the sun should rise and find your eyes, all filled with tears for me, I wish so much you wouldn't cry the way you did today, while thinking of the many things we didn't get to play, I know how much you love me, as much as I love you, and each time that you think of me, I know you'll miss me too, So when tommorrow starts without me, please try to understand, that an angel came and called my name and took my by the paw and said my place was ready in Heaven at Rainbow Bridge far above and that I'd ave to leave behind all those that I dearly love. But as a turned to walk away, a tear felt from my eye, I thought of all the yesterdays, the good ones and the bad. I thought of all the love we shared and all the fun we had. When I walked through heaven's gates at Rainbow Bridge, I felt so much at home. When God looked down and smiled at me, from his great golden throme, He said "Ths is Eternity, all I've promised you,. today your you life on earth is past, but here it starts anew. I promise no tomorrow, but today will always last and since each day's the same day, there's no longing for the past." So when tomorrow starts without me, don't think we're far apart, for every time you think of me, I'm right here in your heart! ~~~~ My condolences, Johnny & Tessy

Johnny

Jerry, I'm so, so sorry to hear about Lucky. I've been following your fight here on the board but haven't posted. Please don't beat yourself up. You did the best that you could with the information you had at hand, and you made every decision for Lucky with love and with his best interests at heart. I have a pretty good idea how you feel; we lost Bronwyn after only 36 whirlwind hours of dealing with IMHA and I spent months questioning the decisions we made and wondering if things would have turned out differently had we taken her to another vet or gone earlier. She was only 19 months old, and there were so many "what ifs" hanging over my head, and it took a long time for me to work them out. You loved Lucky and he knew that. You said it yourself - you'll be in debt for a while, but you'll feel better knowing you did everything you could. You did do everything that you could, and Lucky knows that. It might not feel like it right now, but it will get better. My best to your family. Hang in there. Elizabeth

Elizabeth Baltimore

Dear Jerry Please accept my heartfelt condolences in the loss of your Lucky. You should feel comfort in knowing that you did everything you could have possibly done for Lucky and unfortunately not all dogs can be saved no matter how hard we try. But I do believe our pets deserve the right to be given a fighting chance and that is exactly what you did for Lucky you gave him every possible chance and had the courage to know when Lucky had enough and no longer had the quality of life he deserved. You put your feelings aside and did what was best for Lucky, which is a very courageous decision. We have a saying on this board and that is "no regrets" the emotions surrounding this disease are so mixed and complicated and we are all so torn as to what's best for our dogs and you made exactly the right decision in regards to Lucky. Your loss is great...but in time your memories will be greater...RIP Lucky Again please accept my deepest sympathy, Cheryl & Ginger

Cheryl & Ginger Pinevile PA

Thank you for the heartfelt comments. I just got home and it was the first time in 11 years I didn't hear his bark and running to the door. I am heartbroke. I'll never forget him. Here are two of my favorite pics of him. He was a beautiful dog. http://i848.photobucket.com/albums/ab50/JKB355/l_ea5692523b74977262b5c28342dcaf7c.jpg http://i848.photobucket.com/albums/ab50/JKB355/l_66491ec18217516bc7ee22c26e0bcaa9-1.jpg

Jerry

Jerry, we only got a glimps of your life with Lucky, and I honesty feel like we all are fighting in the trenches together. We are fighting an invisible foe, it often feels like we are shooting in the dark, but we will do anything, for the chance to save the ones we love. I am just so sorry, for your loss. But I know he knows you fought for him. You after all are baring the scars. God bless, Carrie and Summer

Carrie DFW Texas

Jerry, I am so very sorry to hear of the loss of your most beloved Lucky. Please accept my deepest sympathies on your loss. When you feel up to it please visit the Loss & Grief page at the Meisha's Hope AIHA/IMHA Web site: http://www.cloudnet.com/~jdickson/loss.htm This page was written with input from those who have lost their dogs to AIHA/IMHA and contains many resources that will be very helpful to you during these most very difficult days. Once again, my deepest sympathies to you on your loss. Know you are in my thoughts and prayers.

Joanne MN

Jerry Thank-you so much for sharing those photos of Lucky and I agree with you he is one handsome boy and has truly earned his angel wings. May your memories of Lucky replace your pain in the days to come. Cheryl & Ginger

Cheryl & Ginger Pinevile PA

Jerry, I am so saddened to read your post about losing Lucky. It is a pain I know well. Please do not beat yourself up over the "what if's" We spent over $15,000 in one month with the best vets on board and still lost our dear Salome. Sometimes no matter what you do and how fast you do it you just can't beat this awful disease. Lucky will always be with you in your heart and knows that you did your very best for him with the knowledge you had at the time. Lucky was a very handsome boy and while his time with you will always feel to short I am sure the good days with him will be memories that will last forever. Take care Penny

Penny Lytle Creek Calif

Dear Jerry, I am so saddened to learn about your loss of Lucky and I am crying seeing the pictures of him...he looked like our Juliet who was part lab too and had similar white markings. It has been a week since Juliet left us and we are very sad as well. I believe that all of us that have gone through this terrible disease with our pets goes through the same kind of second guessing about what we could have done or should have done. Like you, we over extended ourselves financially to try to save our dog and will be paying it off over time. We all try our best. What I do know is that the these life lessons make us all wiser and stronger. We will all be better pet parents after this experience and definitely more knowledgeable. You and Lucky were fortunate to share 11 good years together.Think about the good times, grieve and eventually you will decide to love again. Sincere condolences, Pat

Pat Vermont

Jerry, It has been a month since we lost our precious Rosie, she was the center of our world. It will get a little easier with time, your heart will not always feel as though it is cut wide open. I am so sorry for your loss and what you and Lucky have gone through. It is the toughest thing to see your dog go through, but you really gave him everything you could, and he knows that! You have to find peace in time knowing this. Lucky was lucky to have you! Please take care.

Heather oregon

Dear Jerry, I am so sorry to hear about Lucky. Thanks for sharing the photos of Lucky, he really was such a handsome boy! Please accept our sincere sympathies on your loss. May the happy memories comfort you during this sad time. Sam & Millie.

Samantha Geelong Australia

Thank you. I really appreciate all the support I have recieved from everyone on this site. It has helped me a lot. I am still having a hard time adjusting to life without him. And as expected, I still feel horrible for how it all ended. I hope I did the right thing. Everyone keeps telling me I did all I could. The hardest part is waking up in the middle of the night to see how he's doing only to realize he isn't there. I miss him terribly. I have another dog named Megan. She is a Great Dane/Lab mix. She seems to feel my pain and has been showering me with hugs and kisses. She misses Lucky too. I have been gathering up pictures of Lucky. I am going to make a tribute video when I feel up to it. I apologize for not posting more in the other threads. It might be hard for me to at this point. Hopefully in the future, I can contribute to help others the way you all did for me.

Jerry

Jerry, so very sorry to read of your loss. I feel your pain that you are going through. I lost my little dog over 2 years ago and it still hurts. But just knowing you did everything possible will always be something you can be proud of. It is an awful disease with little answers. My thoughts are with you at this difficult time. Julie Australia.

Julie Australia

Jerry~ So sad to hear of your loss. I'm sure it is hard coming home and not hearing or seeing Lucky. You are in my prayers. You did all you KNEW to do at the time...most important is that Lucky knew you loved him and as said before, not all dogs recover no matter how much medical attention they recieve or how many prayers go up. Enjoy your other "furbaby" and together you will mend. Blessings, Cindi & Tori (IMHA)

Cindi PCB

Jerry, I haven't been on this site for a very long time since I had to make the same decision as you did with my Sami. Know that in your heart that you did all you could. What works for other dogs may not work or have worked for Lucky. I have spent over a year thinking of the "what ifs" as far as my Sami was concerned and as I'm writing this the tears are streaming down my face because I know what you're going thru emotionally. My Sami lost almost 20 lbs in the course of a month. He was on high doses of cyclosporine and prednizone, aspirin, and 4 or 5 other meds that I forget right now. He went from a dog that would play frisbee for hours to one who couldn't walk and barely lift his head. It came down to who was I doing this for Sami or me. I spent his last night sleeping on the floor beside him as we both cried, Sami when I took away my hand from his head and me knowing that I couldn't put him through this anymore even though he had two appointments booked that morning at two different vets, one for an ultrasound and another for a consult. I let him go and now I know it was the right thing to do. I came back to this site to gain more knowledge to possibly help a dog in rescue who's suffering with not necessarily IMHA but some kind of immune problem that's causing her skin issues. This thread was a life line for me with Sami and everyone who discovers it. All these folks are wonderful for sharing their knowledge. Know in your heart that you did ALL that you could for Lucky! Sue

Sue Kingston

Thank you. I am so sorry you went through the same thing. There are so many caring thoughtful people on this site. I still check the site time to time. It's almost been a month now and I haven't really recovered from losing him. I am starting to realize I did the right thing. I found a video I didn't know I had that someone else recorded of Lucky today. He was just standing there wagging his tail. But just seeing that had me bawling. I miss him so much.

Jerry

Dear Jerry, I am so saddened to hear this news about your dear lucky. Emotions still raw here from the loss of my girly Juliet and mourning with you for another friend lost. Best to you. Pat

Pat Vermont

This thread was discussed between 05/01/2011 and 18/02/2011

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